Support Organizations

Send information to:  Webmaster

Acoustic Neuroma Association of Canada
Box 369
Edmonton, Alberta
T5J 2J6
Ph:(780) 428-3384
Toll Free: 1-800-561-2262
anac@compusmart.ab.ca

 

Canadian Addison Society
193 Elgin Ave. West
Goderich, Ontario
N7A 2E7
Ph:(613) 590-1019
Fax: (613) 590-1021
Toll Free: 1-888-550-5582
lainger_1@sympatico.ca

 

Congenital Adrenal Hyperplasia
127 St. Patrick St.
#1002
Toronto, Ontario
M5T 3C1
Ph:(416) 351-7398
e.bann@sympatico.ca

 

AGES Advocacy Group for the
235 Bay Street
Apt. 808
Ottawa, Ontario
K1R 5Z2
Ph:(613) 990-6415

 

Aicardi Syndrome Awareness & Support Group
29 Delavan Avenue
Toronto, Ontario
M5P 1T2
Ph:(416) 481-4095
asasn@sympatico.ca

 

Canadian AIDS Society
309 Cooper Street, 4th Floor
Ottawa, Ontario
K2P 0G5
Ph:(613) 230-3580
Fax: (613) 563-4998
Toll Free: 1-800-499-1986
CASinfo@cdnaids.ca

 

Canadian Aids Treatment Information Exchange
555 Richmond Street W. Suite 505
Toronto, Ontario
M5V 3B1
Ph:(416) 203-7122
Fax: (416) 203-8284
Toll Free: 1-800-263-1388
info@catie.ca

 

AISSG Canada (West)
#17, 3031 Williams Road
Richmond, BC
V7E 1H9
lesnick@shaw.ca

 

Allergy/Asthma Information Association
Box 100
Toronto, Ontario
M9W 5K9
Ph:(416) 679-9521
Fax: (416) 679-9524
Toll Free: 1-800-611-7011
national@aaia.ca

 

Canadian Alopecia Areata Association
Box 42084 Lee Ride Postal Outlet
Edmonton, Alberta
T6K 4C4

 

Quebec Alopecia Areata Foundation
7912 Chouinard
LaSalle, Quebec
H8N 2E6
Ph:(514) 364-6446
Ph:(514) 637-6062

 

Alpha-1 Antitrypsin
Toronto Hospital Western Div.
399 Bathurst St. Suite # 4-011
Toronto, Ontario
M5T 2S8
Ph:(416) 603-5020
Fax: (416) 603-5020
Toll Free: 1-800-352-8186
paterson@alpha1canadianregistry.com

 

Alstrom Syndrome Canada
R.R. #2
Box 204
Finch, Ontario
K0C 1K0
Ph:(613) 346-2604
rdouglas@glen-net.ca or
Randy.Douglas@NBPCD.com
 

Alzheimer Society of Canada
20 Eglinton Ave. West
Suite 1200
Toronto, Ontario
M4R 1K8
Ph:(416) 488-8772
Ph:(416) 488-3778
Fax: (416) 925-1649
Toll Free: 1-800-616-8816
info@alzheimer.ca

 

Amyotrophic Lateral Sclerosis (ALS) Society of Canada
265 Yorkland Blvd
Suite 300
Toronto, Ontario
M2J 1S5
Ph:(416) 497-2267
Fax: (416) 497-1256
Toll Free: 1-800-267-4257
alscanada@als.ca

 

Anaphylaxis Network of Canada
416 Moore Avenue, Suite 306
Toronto, Ontario
M4G 1C9
Ph:(416) 785-5660
Fax: (416)785-0458
info@anaphylaxis.ca

 

Androgen Insensitivity Syndrome
206 115 The Esplanade
Toronto, Ontario
M5E 1Y7
sallie@ican.net

 

Canadian Angelman Society
PO Box 37
Priddis, Alberta
T0L 1W0
Ph:(403) 931-2415
Fax: (403) 931-4237
cass01@telus.net

 

Canadian Hereditary Angioedema Society
Box 2072
Claresholm, AB
T0L 0T0
Ph:403-625-5297
info@haecanada.com

 

Canadian Foundation for Aniridia Research
3780 Verdun Avenue
Montreal, Quebec
H4G 1K6
Ph:(514) 761-5998
cfar@generation.net

 

Ankylosing Spondylitis Association of British Columbia (ASABC)
#111-125 West 18th St. N.
Vancouver, B.C.
V7M 1W5
Ph:(604) 879-7511

 

Manitoba Ankylosing Spondylitis Association
19 Carolyn Bay
Winnipeg, Manitoba
R2J 2Z3
Ph:(204) 256-5320

 

Ankylosing Spondylitis Support Group Of Nova Scotia
C/O Arthritis Society
2745 Dutch Village Road, Suite 100
Halifax, Nova Scotia
B3L 4G7
Ph:(902) 429-7025

 

Canadian Apheresis Study Group
435 St Laurent Blvd
Suite 206
Ottawa, Ontario
K1K 2Z8
Ph:(613) 748-9613

 

Canadian Apheresis Study Group
435 St. Laurent Blvd. Suite 206
Ottawa, Ontario
K1K 2Z8
Ph:(613) 748-9613
Fax: (613) 748-6392
cag@magi.com

 

Aplastic Anemia and Myelodysplasia Association of Canada
22 Aikenhead Road
Etobicoke, Ontario
M9R 2Z3
Ph:(416) 235-0468
Fax: (905)780-1648
Toll Free: 1-888-840-0039

 

Arthritis Self Help Group
204-825 Sherbrook Street
Winnipeg, Manitoba
R3A 1M4
Ph:(204) 783-4227
Fax: (204) 975-3027
ashgroup@mts.net

 

Arthrite Montreal Arthritis
750 Dawson Ave. Suite 103
Dorval, Quebec
H9S 1X1
Ph:(514) 631-3288
Fax: (514) 631-9484
info@arthritismontreal.ca

 

The Arthritis Society
393 University Street
Suite 1700
Toronto, Ontario
M5G 1E6
Ph:(416) 979-1149
Ph:(416) 979-7228
Fax: (416) 979-8366
Toll Free: 1-800-321-1433
info@arthritis.ca

 

The Asperger's Society of Ontario
293 Wychwood Avenue
Toronto, ON
M6C 2T6
Ph:(416) 651-4037
aspergers.society@sympatico.ca

 

Asthma Society of Canada
130 Bridgeland Ave., Ste 425
Toronto, Ontario
M6A 1Z4
Ph:(416) 787-4050
Fax: (416) 787-5807
Toll Free: 1-800-787-3880
info@asthma.ca

 

Canadian Ataxia Support Group
37 Ericsson Bay
Winnipeg, Manitoba
R3K 0T8
Ph:(204) 885-3955
tgreenwood@home.com

 

Canadian Ataxia Support Group
c/o Kiwanis Nursing Home (Rose Gallant)
11 Bryant Drive
Sussex, New Brunswick

 

Canadian Ataxia South Central Ontario
35 Rosewood Avenue
Contact: Cathy Chamberlain
Belleville, Ontario
K8N 4G1
Ph:(613) 962-9623

 

Canadian Ataxia Information Network
#13 - 1110 Odlum Drive
Vancouver, British Columbia
V5L 3L7
Ph:(604) 225-4590
queen@istar.ca

 

Canadian Ataxia Information Network
231 - 6440 Centre Street N
Calgary, Alberta
T2K 0U4
susanmduncan@hotmail.com

 

Autism Society of Ontario
1179A King Street W.
Suite 004
Toronto, Ontario
M6K 3C5
Ph:(416) 246-9592
Fax: (416) 246-9417
mail@autismsociety.on.ca

 

Geneva Centre for Autism
250 Davisville Avenue
Suite 200
Toronto, Ontario
M4S 1H2
Ph:(416) 322-7877
Fax: (416) 322-5894
info@autism.net

 

Autism Family Support and Resource Centre
104, 143 Wellington Street W
Chatham, Ontario
N7L 5K4
Ph:(519) 352-7827

 

B.C.N.F. Foundation
1212 West Broadway
Suite 303
Vancouver, B.C.
V6H 3V1
Fax: (604) 730-1015
Toll Free: 1-800-385-2263
bcnf@aristra.nisa.com

 

Canadian Chapter of Batten Disease Support & Research Association
17 Bell Street
Regina, Saskatchewan
S4S 4B7
Ph:(306) 789-9047
Toll Free: 1-800-448-4570
gmaxim@cableregina.com or
bdsra1@bdsra.org
 

Behcets Canada
PO Box 325
Tiverton, Ontario
N0G 2T0

 

Canadian National Institute for the Blind
Ontario Division
320 Mcleod Street
Ottawa, Ontario
K2P 1A3
Ph:(905) 826-3223
Fax: (905) 826-2125

 

Canadian National Institute for the Blind - Alberta-NWT Division
15 Colonel Baker Place N.E.
Calgary, Alberta
T2E 4Z3
Ph:(403) 266-8831

 

Canadian National Institute for the Blind - Head Office
1929 Bayview Avenue
Toronto, Ontario
M4G 3E8
Ph:(416) 480-7569
Ph:(416) 486-2500
Fax: (416) 480-7699
irc@lib.cnib.ca

 

The Foundation Fighting Blindness - Canada
60 St. Clair Ave. E.
Suite 703
Toronto, Ontario
M4T 1N5
Ph:(416) 360-4200
Fax: (416) 360-0060
Toll Free: 1-800-461-3331
info@rpresearch.ca

 

Brain Child - Office and Support Group at Hospital for Sick Children
555 University Avenue
Toronto, Ontario
M5G 1X8
Ph:(416) 813-7974

 

Brain Tumor Foundation of Canada
650 Waterloo Street
Suite 100
London, Ontario
N6B 2R4
Ph:(519) 642-7755
Fax: (519) 642-7192
Toll Free: 1-800-265-5106
btfc@gtn.net

 

Hereditary Breast Cancer Clinic
608, 400 Tache Avenue
Winnipeg, Manitoba
R2H 3C3
Ph:(204) 235-3674
Fax: (204) 231-3842
kim.serfas@cancerecare.mb.ca

 

Canadian Breast Cancer Foundation
790 Bay Street
Suite 500
Toronto, Ontario
M5G 1N8
Ph:(416) 596-6773
Fax: (613) 596-7857

 

Canadian Breast Cancer Network
331 Cooper Street
Suite 602
Ottawa, Ontario
K2P 0G5
Ph:(613) 230-3044
Fax: (613) 230-4424
Toll Free: 1-800-685-8820
cbcn@cbcn.ca

 

Canadian Breast Cancer Research Alliance
790 Bay St., Suite 1000
Toronto, Ontario
M5G 1N8
Ph:(416) 596-6598
Fax: (416) 596-1714
cbcra@cbcf.org

 

C.H.A.D.D. Canada Inc.
1376 Bank Street
Ottawa, Ontario
K1H 7Y3
Ph:(613) 731-1209
Fax: (604) 272-6651
info@chaddcanada.org

 

Canadian National Institute for the Blind Ontario Division
320 McLeod Street
Ottawa, Ontario
K2P 1A3
Ph:(905) 826-3223
Fax: (905) 826-2125

 

Canadian AIDS Society
130 Albert Street
Suite 900
Ottawa, Ontario
K1P 5G4
Ph:(613) 230-3580
Fax: (613) 563-4998
CASinfo@cnaids.ca

 

Canadian Alopecia Areata Association
Box 42084,Lee Ride Postal Outlet
Edmonton, Alberta
T6K 4C4

Canadian Angelman Society
P.O. Box 37
Priddis, Alberta
T1L 1W0
Ph:(403) 931-2415
Fax: (403) 931-2415
cass@cadvision.com

 

Canadian Down Syndrome Society
811-14 Street N.W.
Calgary, Alberta
T2N 2A4
Ph:(403) 270-8500
Fax: (403) 270-8291
Toll Free: 1-800-883-5608
dsinfo@cdss.ca

 

Canadian Hypophosphatasia Society
R.R. #2
Clayton, Ontario
K0A 1P0
Ph:(613) 256-8532
hypophosphatasia@yahoo.com

 

Psoriasis Society of Canada
P.O. Box 25015

Canadian Hemophilia Society
652 President Kennedy
Suite 210
Montreal, Quebec
H3A 1K2
Ph:(514) 848-0503
Fax: (514) 848-9661
Toll Free: 1-800-668-2686
chs@hemophilia.ca

 

Hemophilia Clinic Alberta Children’s Hospital
1820 Richmond Road SW
Calgary, Alberta
T2T 5C7

 

The Hepatitis C Society of Canada
3050 Confederation Parkway
Unit 301-B
Mississauga, Ontario
L5B 3Z6
Ph:(905) 270-1110
Fax: (905) 270-1277
Toll Free: 1-800-652-4372
mail@hepatitiscsociety.com

 

Hepatitis C Education and Prevention Society
2741 Richmond Road
Victoria, B.C.
V8R 4T3
info@hepcbc.org

 

Hereditary Hemorrhagic Telangiectasia
8651 Tulsy Crescent W.
Surrey, BC
V3W 6C5
Ph:(604) 596-3418
Fax: (604) 596-0138
hhtinfo@hht.org

 

Histiocytosis Association of Canada
PO Box 29095
Okanagan Mission RPO
Kelowna, British Columbia
V1W 4A7
Ph:(250) 764-6104
histio.canada@shaw.ca

 

HUG (Help Us Grow) Foundation for Growth Problems in Children
C/O Dr. M.R. Jenner, Children’s Hospital of Western Ontario
80 Commissioners Rd. E.
London, Ontario
N6Y 2V5
Ph:(519) 685-8500
Ph:ext. 58139
Janice.rennie@lhsc.on.ca

 

Huntington Society of Canada
151 Frederick Street
Kitchener, Ontario
N2H 2M2
Ph:(519) 749-7063
Toll Free: 1-800-998-7398
info@hsc.ca.org

 

Huntington’s Disease Resource Centre
C/O St. Joseph’s Auxilliary Hospital
10707 – 29 Avenue
Edmonton, Alberta
T6J 6W1
Ph:(780) 434-3229
Fax: (780) 430-9777

 

Canadian Tinnitus-Hyperacusis
200 Brock Street N.
Whitley, Ontario
L1N 4H5
Ph:(905) 668-3378
cantin@taso.com

 

Canadian Hyperlexia Association
300 John Street,
Box 87673
Thornhill, Ontario
L3T 7R3
Ph:(905) 886-9163
Fax: (905) 886-4624
cha@ican.net

 

Canadian Hypophosphatasia Society
R.R. #2
Clayton, Ontario
K0A 1P0
Ph:(613) 256-8532
hypophosphatasia@yahoo.com

 

Canadian Immunodeficiencies Patient Organization
32 Concession 12 E RR#2
Hastings, Ontario
K0L 1Y0
Toll Free: 1-877-262-2476
tina.morgan@cipo.net

 

Canadian Foundation for the Study of Infant Deaths
586 Eglinton Avenue East
Suite 308
Toronto, Ontario
M4P 1P2
Ph:(416) 488-3260
Fax: (416) 488-3864
Toll Free: 1-800-363-7437
sidscanada@inforamp.net

 

Intersex Society of North America (ISNA)
PO Box 1076
Haliburton, Ontario
K0M 1S0

 

Kabuki Syndrome Network
8060 Struthers Crescent
Regina, Saskatchewan
S4Y 1J3
Ph:(306) 543-8715
dschmeidge@dlcwest.com

 

Kidney Foundation Of Canada
300 - 5165 Sherbrook Street West
Montreal, Quebec
H4A 1T6
Ph:(514) 369-4806
Fax: (514) 369-2472
Toll Free: 1-800-361-7494
execdirector@kidney.ca

 

Kidney Foundation of Canada
N302-628 W 13 Avenue
Vancouver, B.C.
V5Z 1N9
Ph:(604) 738-8486
Fax: (604) 738-4042
beryl@alumni.ubc.ca

 

Klinefelter Support Group
6 Mildred Avenue
St. Catherines, Ontario
L2R 6H8
Ph:(905) 688-1153
vhambley@47xxy.org

 

Klippel Trenaunay Syndrome Support Group
3265 Turner Road
Windsor, Ontario
N8W 3M2
Ph:(519) 966-0604
Deewestlake@aol.com

 

Langer-Giedion Syndrome Association
89 Ingham Avenue
Toronto, Ontario
M4K 2W8
Ph:(416) 465-3029
Fax: (416) 465-4963
lkinross@rogers.com

 

Little People of Ontario
PO Box 430712
Toronto, Ontario
M2N 6N1
lpo@bfree.on.ca

 

Canadian Liver Foundation
2235 Shepphard Avenue E.
Suite 1500
Toronto, Ontario
M2J 5B5
Ph:(416) 491-3353
Fax: (416) 4914952
Toll Free: 1-800-563-5483
cfl@liver.ca

 

Canadian Liver Foundation
#200, 10435 178 St.
Edmonton, Alberta
T5S 1R5
Ph:(780) 444-1547
Fax: (780) 481-7781
Toll Free: 1-888-557-5516
edmclfab@compusmart.ab.ca

 

LPBC Society for Short Stature Awareness
Box 2480
Vancouver, British Columbia
V6B 3Z7
Ph:(604) 688-4757
Fax: (604) 688-4758
mmrlpb@bc.sympatico.ca

 

LPHS International Foundation
Apt. 207, 6103-35a Ave.
Edmonton, Alberta
T6K 2G6
Ph:(780) 461-3996
cshilling@shaw.ca

 

Canadian Lung Association
3 Raymond Street, Suite 300
Ottawa, Ontario
K1R 1A3
Ph:(613) 569-6411
Fax: (613) 569-8860
info@lung.ca

 

Alberta Lung Association
#302, 609-14th Street N.W.
Calgary, Alberta
T2N 2A1
Ph:(613) 563-1565
Fax: (613) 567-0614
Toll Free: 1-800-661-LUNG
jhall@lung.ab.ca

 

Lupus Canada
Box 64034
5512-4th Street NW
Calgary, Alberta
T2K 6J1
Ph:(403) 274-5599
Fax: (403) 274-5599
Toll Free: 1-800-661-1468
info@lupuscanada.org

 

Lupus Society of Alberta
1301 – 8 St. SW
Suite 200
Calgary, Alberta
T2R 1B7
Ph:(403) 228-7956
Toll Free: 1-888-242-9182
lupuslsa@home.com

 

Lymphedema Association of Quebec
687 Avenue des Pins Ouest, local A244
Montreal, Quebec
H3A 1A1
Ph:(514) 979-2463
infolympho@icomm.ca

 

The BC Cancer Agency Lymphedema Control Program
Vancouver Cancer Centre
600 West 10th Avenue
Vancouver, B.C.
V5Z 4E6
Ph:(604) 877-6000
Fax: (604) 872-4596
webmaster@bccancer.bc.ca

 

Lymphovenous Association of Ontario
PM Postal, Box 55241
1800 Sheppard Ave. E.
Toronto, Ontario
M2J 5A0
Ph:(416) 410-2250
Toll Free: 1-877-723-0033
lymphontario@yahoo.com

 

Canadian Lymphedema Foundation/Lymphovenous Canada
8 Silver Avenue
Toronto, Ontario
M6R 1X8
Ph:(416) 533-2428
Fax: (416) 539-8348
info@lymphovenous-canada.com

 

Malignant Hypothermia Association
200 Elizabeth St.
CCRW-2-834
Toronto, Ontario
M5G 2C4
Ph:(416) 340-3238
Fax: (416) 340-4960

 

Ontario Association for Maple Syrup Urine Disease Research
42 Alpha Mills Road
Mississauga, Ontario
L5N 1H6
Ph:(905) 567-4188

 

Canadian Marfan Association
128 Queens Street
Mississauga, Ontario
L5M 4Z0
Ph:(905) 826-3223
Fax: (905) 826-2125
marfan@istar.ca

 

Canada Mastocytosis
405 - 75 Huxley Street
London, ON
N6J 4W7
Ph:(519) 675-0850
CLDarville@aol.com

 

The National ME/FM Action Network
3836 Carling Avenue
Nepean, Ontario
K2K 2Y6
Ph:(613) 829-6667
Fax: (613) 829-6667

 

Meningitis Research Foundation of Canada
P.O. Box 28015
RPO Parkdale
Waterloo, Ontario
N2L 6J8
Ph:(519) 746-8306
Fax: (519) 746-8306
Toll Free: 1-800-643-1303
fund@meningitis.ca

 

Canadian Society for Metabolic Disease
PO Box 64606
1942 Como Lake Ave.
Coquitlam, British Columbia
V3J 7V7
Ph:(604) 464-1017
info@csmd.ca

 

Canadian Society for Metabolic Diseases
304 Hawkwood Blvd.NW
Calgary, Alberta
T3G 2Y5
Ph:(403) 239-0885

 

Moebius Syndrome Foundation of Canada
5011 Hillside Drive
Beamsville, Ontario
L0R 1B7
Ph:(905) 563-0938
batenbur@vaxxine.com

 

The Canadian Movement Disorder Group
339 Windermere Road
London, Ontario
Ph:(519) 663-3814
Ph:(519) 663-3174
mander.jog@lhsc.on.ca

 

Canadian Society for Mucopolysaccharide and Related Disorders
Postal Box #64714
Unionville, Ontario
L3R 0M9
Ph:(905) 479-8701
Ph:(604) 597-6799
Fax: (905) 479-8701
Toll Free: 1-800-667-1846
lori@mpssociety.ca or
corri@mpssociety.ca
 

Canadian Multiple Endocrine Neoplasia Type 1 Society Inc.
Box 100
Meota, Saskatchewan
S0M 1X0
Ph:(306) 892-2080
Fax: (306) 892-2080
men.society@sk.sympatico.ca

 

Multiple Sclerosis Society of Canada
250 Bloor Street E.
Suite 1000
Toronto, Ontario
M4W 3P9
Ph:(416) 922-6065
Fax: (416) 922-7538
info@mssoc.ca

 

Muscular Dystrophy Association of Canada
Alberta and Northwest Territories
10335 - 172 Street
Suite 104
Edmonton, Alberta
T5S 1K9
Ph:(403) 489-6322
Fax: (403) 486-1948
Toll Free: 1-800-661-9312
mdac98@telusplanet.net

 

Society for Muscular Dystrophy Information International
Box 479
Bridgewater, Nova Scotia
B4V 2X6
Ph:(902) 685-3961
Fax: (902) 685-3962
smdi@auracom.com

 

Muscular Dystrophy Canada
2345 Yonge Street
Suite 901
Toronto, Ontario
M4P 2E5
Ph:(416) 488-2699
Fax: (416) 488-0107
Toll Free: 1-866-687-2538
info@muscle.ca

 

The Myalgic Encephalomyelitis Society
PO Box 42504
105-1005 Columbia Street
New Westminster, British Columbia
V3M 6H5
Ph:(604) 878-7707
Toll Free: 1-888-353-6322
MEBC@mefm.bc.ca

 

The Myalgic Encephalomyelitis Association
2230 Mountainside Drive #5
Burlington, Ontario
L7P 1B5
Ph:(905) 319-7966
Fax: (905) 319-3768
me-cfs@hwen.org

 

Myasthenia Gravis
25 Caravan Drive
Don Mills, Ontario
M3B 1M9
Ph:(416) 444-8357
PKHL45B@prodigy.com

 

The Myelin Project of Canada
4330 Spinningdale Court
Mississauga, Ontario
L5M 3J8
Ph:(905) 567-8843
Fax: (905) 567-9189
myelin@interlog.com

 

Aplastic Anemia and Myelodysplasia Association of Canada
22 Aikenhead Road
Etobicoke, Ontario
M9R 2Z3
Ph:(416) 235-0468
Fax: (416) 235-1756
Toll Free: 1-888-840-0039

 

Myelofibrosis List Serve
3832 Claret Street NW
Calgary, Alberta
T2L 1C1
Ph:(403) 289-9373
afitch@telusplanet.net

 

British Columbia Neurofibromatosis Foundation
#203, 1001 Cloverdale Avenue
Victoria, British Columbia
V8X 4C9
Ph:(250) 370-7597
Fax: (250) 370-7598
Toll Free: 1-800-385-2263
bcnf@bcnf.bc.ca

 

Neurofibromatosis Society of Ontario
180 Circle Lake Rd.
North Bay, Ontario
P1A 3T2
Ph:(705) 685-1409
Fax: (705) 685-1409
Toll Free: 1-866-THE-NFSO
info@nfon.ca

 

The Association for the Neurologically Disabled of Canada (AND)
59 Clemont Road
Etobicoke, Ontario
M9R 1Y5
Ph:(416) 244-1992
Toll Free: 1-800-561-1497
info@AND.ca

 

Canadian Neuropathy Association
PO Box 64
Pefferlaw, Ontario
L0E 1N0
Fax: (705) 437-3065
Toll Free: 1-800-669-4918
cna@canadianneuropathyassociation.org

 

Canadian Neuropathy Support Group
9616 81st Street
Edmonton, Aalberta
T6C 2W6
Ph:(780) 465-3208
jcgiguere@home.com

 

Neutropenia Support Association Inc.
P.O. Box 243
905 Corydon Avenue
Winnipeg, Manitoba
R3M 3S7
Ph:(204) 489-8454
Toll Free: 1-800-663-8876
stevensl@neutropenia.ca

 

Nightingale Research Foundation (Fibromyalgia/Chronic Fatigue resource
121 Iona Street
Ottawa, Ontario
K1Y 3M1
Fax: (613) 523-1958
nightingale@nightingale.ca

 

Noonan Support Group
313 - 2440 Old Okanogan Hwy.
West Bank, BC
V4T 1X6
Ph:(250) 768-1989
noonansyndrome@hotmail.com

 

Ontario Obsessive Compulsive
PO Box 151
Markham, Ontario
L3P 3J7
Ph:(416) 410-4772
Fax: (905) 472-4473
oocdn@interhop.net

 

Canadian Osteogenesis Imperfecta Society
128 Thornhill Crescent
Chatham, Ontario
N7L 4M3
Ph:(519) 436-0025
Fax: (519) 351-4043
mkearney@kent.net

 

Canadian Osteopathic Association
PO Box 24081
London, Ontario
N6H 5C4
Ph:(519) 681-1500
Fax: (519) 681-1500

 

Canadian Osteoporosis Society of Canada
33 Laird Drive
Toronto, Ontario
M4G 3S9
Ph:(416) 696-2663
Ph:1-800-463-6842
Fax: (416) 696-2673
Toll Free: 1-800-977-1779
jgordon@osteoporosis.ca or
osc@osteoporosis.ca
 

Panniculitis Group Mailing List
address n/a
Panniculitisgroup@juno.com

 

Parkinson Foundation of Canada
4211 Yonge Street
Suite 316
Toronto, Ontario
M2P 2A9
Ph:(416) 227-9700
Fax: (416) 227-9600
Toll Free: 1-800-565-3000
General.info@parkinson,ca

 

The Parkinson’s Society of Ottawa-Carleton
1053 Carling Avenue
Ottawa, Ontario
K1Y 4E9
Ph:(613) 722-9238
Toll Free: (613) 722-3241

 

CMT International Peroneal Muscular Atrophy
International Association, Inc.
1 Springbank Drive
St. Catherines, Ontario
L2S 2K1
Ph:(905) 687-3630
Fax: (905) 687-8753
cmtint@vaxxine.com

 

PKU Canada Inc. Family Association
Hospital for Sick Children
555 University Avenue
Toronto, Ontario
M5G 1X8
Ph:(416) 813-6356
Fax: (416) 813-5345

 

Polycystic Kidney Disease Research Society of Canada
3 - 1750 The Queens Way, Suite 158
Etobicoke, Ontario
M9C 5H5
Ph:(416) 410-1740

 

Familial Polyposis Registry
Mount Sinai Hospital
Suite 1157, 600 University Avenue
Toronto, Ontario
M5G 1X5

 

Canadian Porphyria Foundation Inc.
Box 1206
Neepawa, Manitoba
R0J 1H0
Ph:(204) 476-2800
Fax: (204) 476-2800
porphyria@cpf-inc.ca

 

Ontario Prader-Willi Syndrome Association
1920 Yonge Street C104
Toronto, Ontario
M4S 3B2
Fax: (416) 481-8657
Toll Free: 1-800-563-1123
opwsa@attcanada.ca

 

The Canadian Prader-Willi Syndrome Organization
8-2175 Country Club Drive
Burlington, Ontario
L7M 4H9
CPWSO@hotmail.com

 

Pseudo-Obstruction Resource Center
101 James E. Davis
Greenfield Park, Quebec
J4V 2R6
Ph:(450) 923-9439
jm.keating@sympatico.ca

 

Psoriasis Society of Canada
PO Box 25015
Halifax, Nova Scotia
B3M 4H4
Ph:(902) 443-8680
Fax: (902) 457-1664
Toll Free: 1-800-656-4494

 

Canadian Reflex Sympathetic Dystrophy
#102-1049 Stewart Avenue
Courtenay, B.C.
V9N 3H5
Ph:(250) 338-5835
Fax: (250) 338-5838
info@canadianrsd.com

 

Retinoblastoma Family Association
14 Annette Gate
Richmond Hill, Ontario
L4C 5P3
Ph:(905) 737-2788
Fax: (905) 669-6124
kwikkopy@idirect.com

 

Canadian Rett Syndrome Association and Resource Center
203 Bush Clover Crescent
Kitchener, Ontario
N2E 3P7
Ph:(519) 749-9930
Fax: (519) 749-9930
eugenebradley203@home.com

 

Ontario Rett Syndrome Association
147 Westdale Road
Oakville, Ontario
L6L 4Z7
Ph:(905) 844-8730
rettsont@cgocable.net

 

Reye's Syndrome Foundation of Canada
c\o Alan Gee
RR#2
Kerwood, Ontario
N0M 2B0

 

RTS Canada (Rubinstein-Taybi Syndrome)
111 Twain Drive
Winnipeg, Manitoba
R3K 0R2
Ph:(204) 227-7879
rtscanada@mts.net

 

Schizophrenia Society of Canada
50 Acadia Avenue, Suite 205
Markham, Ontario
L3R 0B3
Ph:(905) 415-2007
Fax: (905) 415-2337
Toll Free: 1-888-772-4673
info@schizophrenia.ca

 

Scleroderma Society of Canada
95 Woodfield Road SW
Calgary, Alberta
T2W 5K5
Ph:(403) 281-7616
Fax: (403) 238-2773
info@scleroderma.ca

 

Association de la scoliose du Quebec
10800 Rue Berri
Montreal, Quebec
H3L 2H4

 

The Selective Mutism Group
196 Antibes Drive
Toronto, Ontario
M2R 3H8
Ph:(416) 667-1715
lingor@pathcom.com

 

Shwachman-Diamond Syndrome Canada
438 Barclay Crescent
Oakville, Ontario
L6J 6H9
Ph:(905) 338-9641
msmyth@cqocable.net

 

Canadian Sickle Cell Society
6999 Cote des Neiges
Suite 33
Montreal, Quebec
H3S 2B8
Ph:(514) 735-5109
Fax: (514) 735-5100

 

Sickle Cell Association
3199 Bathhurst St; Suite 202
Toronto, Ontario
M6A 2B2
Ph:(416) 789-2855
Fax: (416) 789-1903
sicklecell@look.ca

 

SOTOS Syndrome Support Group
1944 Dumfries
Ville Mont-Royal, QC
H3P 2R9
Ph:(514) 342-8466
Fax: (514) 731-1255
info@sssac.com

 

Spina Bifida & Hydrocephalus
167 Lombard Avenue
Suite 977
Winnipeg, Manitoba
R3B 0V3
Ph:(204) 925-3650
Fax: (204) 925-3654
Toll Free: 1-800-565-9488
spinab@mts.net

 

Families of SMA Canada Spinal Muscular Atrophy
PO Box 22024
Brandon, Manitoba
R7A 6Y9
Toll Free: 1-800-866-0016
darren@smacanada.com or
bettylou@fsma.org
 

Stevens Johnson Syndrome & Toxic Epidermal Necrolysis Syndrome Support
1569 Pharmacy Ave.
Toronto, Ontario
M1R 2K6
Ph:(416) 510-8555
rarbuckle@rogers.com

 

Canadian Chapter of Stickler Involved People
190 Duke of Kent
Pointe-Claire, QC
H9R 1Y3
17976@ican.net

 

Sturge-Weber Foundation
1960 Prairie Avenue
Port Coquitlam, B.C.
V3B 1V4
Ph:(604) 942-9209
Fax: (604) 942-6429
kmoore@axionet.com

 

Canadian Association for People Who Stutter
P.O. Box 444
Succ. N.D.G.
Montreal, Quebec
H4A 3P8
Ph:(416) 252-8255
Toll Free: 1-888-788-8837
caps-info@webcon.net

 

Canadian Syringomyelia Network
69 Penny Crescent
Markham, Ontario
L3P 5X7
Ph:(905) 471-8278
Fax: (905) 882-8367
csn@passport.ca

 

National Tay-Sachs and Allied Diseases of Ontario
569 Laural Drive
Burlington, Ontario
L7L 5E1
Ph:(905) 634-4101
ntsad@sympatico.ca

 

Tethered Cord Syndrome Support Group
7091 Tony Road
Prince George, B.C.
V2N 5P4

 

Thalassemia Foundation of Canada
32 Fern Avenue
Weston, Ontario
M9N 1M2
Ph:(416) 242-8425
Fax: (416) 242-8425
info@thalassemia.ca

 

Thalidomide Victims Association of Canada
880 Wellington Street , Suite 616
Ottawa, Ontario
K1R 6K7
Ph:(613) 564-9000
Fax: (613) 564-9001
tvac@bellnet.ca

 

Thyroid Foundation of Canada
PO Box/CP 1919 Stn Main
Kingston, Ontario
K7L 5J7
Ph:(613) 544-8364
Fax: (613) 544-9731
Toll Free: 1-800-267-8822
thyroid@ican.net

 

Tinnitus Association of Canada
c/o 23 Ellis Park Road
Toronto, Ontario
M6S 2V4
Ph:(416) 762-1490

 

Canadian Tinnitus-Hyperacusis Center
c/o Whitby Clinic, 2nd Floor
200 Brock Street N.
Whitby, Ontario
L1N 4H5
Ph:(905) 668-3378
Ph:(905) 668-4002
cantin@interhop.net

 

Tourette Syndrome Foundation of Canada
194 Jarvis Street
Suite 206
Toronto, Ontario
M5B 2B7
Ph:(416) 861-8398
Fax: (416) 861-2472
Toll Free: 1-800-361-3120
tsfc@tourette.ca

 

Tracho Esphageal Fistuala Parent Network
42 Saskatoon Drive
Etobicoke, Ontario
M9P 2E9

 

Vancouver TTM (Tricholtillomania) Peer Support Group & ONLINE Help
on line help
Ph:(604) 733-6186
ttmvan@yahoo.com

 

Trichotillomania Support
Box 783
Claresholm, Alberta
T0L 0T0
Ph:(403) 625-4035
ttmmail@telusplanet.net

 

Trigeminal Neuralgia Alberta Chapter
Marion Guzak
address n/a
Ph:(403) 327-7668

 

Tuberous Sclerosis Canada Sclerose Tubereuse
140 Green Briar Road
Alliston, Ontario
L9R 1S2
Toll Free: 1-800-347-0252
keepsinging@sympatico.org

 

Turner's Syndrome Society
21 Blackthorne Ave.
Toronto, Ontario
M6N 3H4
Ph:(416) 781-2086
Fax: (416) 781-7245
Toll Free: 1-800-465-6744
tssincan@look.ca

 

Hereditary Tyrosinemia
3162 rue Granville
Jonquire, Quebec
G7S 2B9
Ph:(418) 548-1580

 

Canadian VHL Family Alliance
4227 Hamilton Road
Dorchester, Ontario
N0L 1G3
Ph:519-663-5777
Fax: 519 663-3789
canada@vhl.org

 

Canadian Vitiligo Society
Western Hospital, 8th Floor Room 542
399 Bathurst Street
Toronto, Ontario
M5T 2S8

 

Wegener's Granulomatosis Support Group of Canada
446-425 Hespeler Road
Cambridge, Ontario
N1R 8J6
Toll Free: 1-877-572-9474
wgsg@canada.com

 

Canadian Association for Williams Syndrome
P.O. Box 2115
Vancouver, British Columbia
V6B 3T5
Ph:(604) 853-0231
Fax: (604) 853-0232
bev@uniserve.com

 

Wolf-Hirschhorn Syndrome Support Group
RR#2
Carleton Place, Ontario
K7C 3P2
Ph:(613) 257-4461

 

XLH Network of Canada
34640 Devon Crescent
abbotsford, British Columbia
V2S 2X6
Ph:(604) 852-9246
colin_steeksma@telus.net